Just an Engineer with USH

Just an Engineer with USH

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The Trick Your Eyes Do for Your Brain
The machine behind The Brain Tax.
Jul 14 • Mark G. Hubers
The Brain Tax
What losing your sight does to the brain. Not the eyes. The brain.
Jul 13 • Mark G. Hubers

June 2026

Why I Leave Cabinet Doors Open
An open cabinet door, and the sensory failure nobody understands.
Jun 11 • Mark G. Hubers

March 2026

The Hearing Side of Usher Syndrome
I thought this one would be easy to write. It wasn't.
Mar 22 • Mark G. Hubers

February 2026

The Supplement Nobody Questioned
What a 2023 Harvard study found about vitamin A and RP -- and why nobody told us
Feb 23 • Mark G. Hubers
Where in the World is Usher Syndrome?
A Data Dig That Keeps Getting Deeper
Feb 20 • Mark G. Hubers
The 20/25 Paradox
I read 20/25 on an eye chart. I can barely see the wall it's hanging on.
Feb 17 • Mark G. Hubers
The Hope Nobody Explains
One Patient, 50 Trials, and the Guidance Gap That Affects Us All
Feb 17 • Mark G. Hubers
Living with Usher Syndrome: A Window Into My Shrinking Sensory Map
What it feels like inside a shrinking sensory world
Feb 15 • Mark G. Hubers
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